About SparkPage
Last updated: February 1, 2026
What is SparkPage?
SparkPage is a free, mission-driven platform that helps patients, parents, and caregivers create simple, shareable microsites to tell personal stories and explain rare or complex medical conditions.
Our goal is simple: reduce the emotional and cognitive burden of repeatedly explaining a diagnosis while creating durable awareness artifacts that can be shared via link or QR code.
Our Mission
When a family receives a rare or complex diagnosis, they often find themselves explaining the same story over and over—to educators, medical providers, extended family, friends, and community members. Each retelling can be emotionally draining and time-consuming.
SparkPage exists to change that. We believe families should be able to:
- Share their story once and let it speak for them
- Create awareness in a clear, human way
- Maintain control over their narrative and privacy
- Access tools without financial barriers or hidden costs
Our Values
Free for Families, Always
SparkPage is completely free. There are no hidden fees, no subscriptions, no premium tiers, and no plans to charge families in the future. We believe that sharing your story shouldn't come with a price tag.
Privacy First
We don't sell data. We don't run ads. We don't track users. We don't monetize your experience. Your story belongs to you, and we're here to help you share it on your terms.
Simple by Design
Creating a microsite should take minutes, not hours. We've intentionally kept the platform simple and focused, so you can spend your time telling your story, not wrestling with complex tools.
Stories Belong to Families
You own your content. You control who sees it. You decide when to publish, edit, or delete. We're just the platform—your story is yours.
How It Works
1. Create Your Microsite
Sign up for a free account and create your microsite in under 10 minutes. Add your story, photos, and helpful links. No technical skills required.
2. Get Your Link
Your microsite gets a clean, memorable URL: sparkpage.org/example-site. You can also generate a QR code for easy in-person sharing.
3. Share Your Story
Share your link or QR code with educators, medical providers, family members, or anyone who needs to understand your condition. Your microsite is mobile-friendly and optimized for real-world sharing.
4. Edit Anytime
Update your content whenever you need to. Changes go live within seconds, so your microsite always reflects your current story.
Who Is SparkPage For?
Primary Users
- Parents and caregivers of children with rare or complex conditions
- Adult patients managing uncommon diagnoses
- Authorized caregivers acting with permission
Secondary Viewers
- Educators and school staff
- Medical providers
- Policymakers and advocates
- Community members
- Friends and extended family
What Makes SparkPage Different?
No Monetization of Families
Unlike many platforms, we don't:
- Sell your data to advertisers
- Run ads on your microsite
- Charge for features or usage
- Use your content to train AI models
- Share your information with data brokers
Privacy by Default
- Search engines are instructed not to index microsites (noindex by default)
- No third-party tracking or analytics
- Minimal data collection—only what's necessary to operate the platform
- You control visibility - unpublish at any time
Mission-Driven, Not Profit-Driven
SparkPage is operated as a mission-driven project. We're here to help families share their stories, not to maximize revenue or growth metrics.
What SparkPage Is Not
To be clear about our scope and limitations:
- Not a healthcare provider — We don't provide medical advice, diagnosis, or treatment
- Not a fundraising platform — We don't process payments, donations, or fundraising
- Not a social network — No comments, likes, follows, or discovery feeds
- Not a medical organization — We're a platform for families to share their own stories
- Not covered by HIPAA — SparkPage is not a covered entity under HIPAA
All content on SparkPage is provided for general informational and personal storytelling purposes only. Always seek the advice of qualified healthcare professionals regarding any medical condition or treatment decisions.
Our Commitment to Safety
We take the safety and privacy of families seriously, especially when content involves children. We:
- Require users to be at least 18 years old to create accounts
- Comply with COPPA (Children's Online Privacy Protection Act)
- Provide tools for content moderation and removal
- Respond promptly to privacy and safety concerns
- Maintain clear policies about prohibited content
If you have concerns about content on SparkPage, please contact us at support@sparkpage.org.
Frequently Asked Questions
Is SparkPage really free?
Yes. SparkPage is completely free for families. We may introduce a voluntary donation or pay-what-you-want model in the future to help cover hosting and technology costs, but families will never be required to pay for any features of the platform.
Will you sell my data?
No. We don't sell, rent, or share your data with advertisers or data brokers. We don't use your content to train AI models. Your story belongs to you.
Can I delete my microsite?
Yes. You can delete your microsite and all associated content at any time through your account settings or by contacting support.
Who can see my microsite?
You control visibility:
- Published: Accessible by anyone with the link
- Unpublished: Not accessible on the internet (this is like 'draft' mode)
By default, search engines are instructed not to index microsites, so they won't appear in search results.
Can I edit my content?
Yes. You can edit your microsite content at any time. Changes go live within seconds.
What if I need help?
Contact us at support@sparkpage.org. We're here to help.
Contact Us
General Support
Email: support@sparkpage.org
Privacy Questions
Email: privacy@sparkpage.org
Operator
SparkPage is operated by Asbury Bench Solutions LLC.
Our Promise
We built SparkPage because we believe families deserve a simple, free, and private way to share their stories. We're committed to:
- Keeping SparkPage free for families, always
- Protecting your privacy and never monetizing your data
- Maintaining a simple, focused platform that serves your needs
- Responding to your feedback and concerns
Thank you for trusting SparkPage with your story.